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New Futility Case in Texas

It’s been a while since we’ve posted anything on it, but futile care policies have been an area of concern for NDY and other disability rights groups for many years. Things have been quiet for awhile, which isn’t really good news. We only hear about futile care issues if a family goes public – reaching […] Continue reading →

National Council on Disability Will Consider Proposal to Address Health Care Decisions Policies that Threaten the Lives of People With Disabilities

The National Council on Disability met on May 6th at the Ed Roberts Campus in San Francisco.  This is a presidentially appointed Council that advises the Administration on disability policy.  The Council always offers opportunities for public comment, and NDY has been asking NCD to help lead efforts to address abuses in health care decisions […] Continue reading →

Diane Coleman Presents Comments on Futility at July 25 Mtg of National Council on Disability

Many apologies for the delays in getting this out.  Last week, there were many activities and events to mark the 23rd anniversary of the signing of the Americans with Disabilities Act (ADA).  One of those events was a meeting of the National Council on Disability.  Here’s the description and info from last week’s press release […] Continue reading →

NDY quoted in Pew Trusts’ Stateline: New End-of-Life Measure Quietly Sweeps the Nation

This week, the Pew Charitable Trusts’ Stateline carried an article entitled “New End-of-Life Measure Quietly Sweeps the Nation.”  The measure described is Physician Orders for Life-Sustaining Treatment (POLST), sometimes also called Medical Orders for Life-Sustaining Treatment (MOLST).  According to the National POLST Paradigm website, POLST originated in 1991, and 14 states had adopted it by […] Continue reading →

NDY President Diane Coleman Submits Comments on Futile Care Policies to National Council on Disability

The National Council on Disability (NCD) “is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities. NCD is comprised of a team of fifteen Presidential appointees , an Executive Director appointed by the Chairman, and eleven, full-time professional staff.” […] Continue reading →

Why I Support the CRPD

This past week, the U.S. Senate voted to proceed with consideration of U.S.ratification of the United Nations Convention on the Rights of Persons with Disabilities (CRPD).  With a two-thirds majority required to move to the next step, the cloture vote was 61 to 36, with 3 not voting. Not Dead Yet has not yet formally […] Continue reading →

Diane Coleman’s Plenary Remarks at Adv. Care Planning and ‘End of Life’ Conference on May 31

Editor’s note: Diane’s plenary remarks included the use of PowerPoint slides. I don’t have access to these, but have included links in cases where people might want more information and/or verification.) Plenary Remarks at ACPEL Conference – May 31, 2012 I’d like to begin by presenting a CASE STUDY. It’s a true story, as told […] Continue reading →

Texas: Supporters of Texas “Futile Care” Law Continue to Maintain the Status Quo, Preventing Change

On Sunday (May 8, 2011), the Austin American-Statesman published an update of sorts on the continuing stalemate over the Texas “futile care statute,” which translates as a “win” for supporters of the status quo. It’s a fascinating article – for many reasons.  But perhaps the most fascinating are the many contradictions contained in the article […] Continue reading →

Today’s edition of the Wall Street Journal has a very good article on the Betancourt v. Trinitas case in New Jersey.  (All of the previous posts on the case can be found by accessing this link) Suzanne Sataline provides the best summary of the issues in the case – as argued by stakeholders on both […] Continue reading →

New Jersey/Futility: Oral Arguments in Betancourt v. Trinitas (Appellate Court)

Oral arguments are scheduled today (April 27, 2010) in front of the New Jersey Appellate Division.  The case is Betancourt v. Trinitas.  You can read more about the case here and here.  It’s an important judicial hearing on one hospital’s claim regarding the extent of their “right” to summarily refuse life-sustaining medical treatment over the […] Continue reading →

More on Betancourt

For the most complete information on the Betancourt case, including links to other amicus briefs, the best resource I’ve found is the Medical Futility Blog by Thaddeus Mason Pope. Pope disagrees with NDY on a significant number of issues, but he’s an impressive researcher who has posted links to research and news coverage that I’ve […] Continue reading →