Category Archives: Surrogate Decisions & Guardianship

Lisa Blumberg: Support Grows for a Bill of Rights for People with Guardians

civil rights, Health care decision-making, Lisa Blumberg, medical decisionmaking, Our News & Commentary Blog, supported decision making, Surrogate Decisions & Guardianship, ,

Alexandra is a woman in her forties who has been described as developmentally disabled and has sometimes had problems managing her budget.  She cares about having a conventional appearance and her preference is for V-neck blouses. She unfortunately has early-stage breast cancer, but it could be treated in various ways. She could benefit from having … Continue reading Lisa Blumberg: Support Grows for a Bill of Rights for People with Guardians →

Michael Hickson’s Widow Files Civil Case Against Guardian Agency That Consented To His Death

death through denial, futility, health disparities, healthcare rationing, life-ending decisions, life-sustaining treatment, medical discrimination, Michael Hickson, Our News & Commentary Blog, Surrogate Decisions & Guardianship, ,

[Press Release from the law firm involved:] FOR IMMEDIATE RELEASE March 16, 2021 Chicago, Illinois ROBBINS, SALOMON & PATT, LTD. SEEKS JUSTICE FOR MICHAEL HICKSON, FILES LAWSUIT AGAINST GUARDIANSHIP PROGRAM Robbins, Salomon & Patt, Ltd. (RSP) on March 10, 2021, filed a lawsuit against Family Eldercare, Inc., a Texas guardianship program and two of its … Continue reading Michael Hickson’s Widow Files Civil Case Against Guardian Agency That Consented To His Death →

Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions

ADAPT, bioethics, ethics committee, futile care, futility, Health care decision-making, healthcare rationing, life-ending decisions, life-sustaining treatment, medical discrimination, Michael Hickson, national council on independent living, Our News & Commentary Blog, surrogate decision making, Surrogate Decisions & Guardianship, treatment withdrawal, , , ,

On July 24th, ADAPT of Texas filed a complaint with the federal Department of Health and Human Services Office for Civil Rights (OCR) concerning the death of Michael Hickson, a Black Disabled man, at St. David’s South Austin Medical Center. The complaint called for . . . “. . . an investigation of St David’s … Continue reading Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions →

NDY Public Comment On Guardianship Urges More Rights Protections for Disabled & Elders

ageism, elder abuse, elder law, Our News & Commentary Blog, public comment, supported decision making, surrogate decision making, Surrogate Decisions & Guardianship, ,

One of the longest standing concerns of the disability rights movement is the misappropriation by others of our rights to make our own decisions. This problem touches every facet of life and is a major factor in the continuing incarceration of older and disabled people in nursing facilities and other institutions for the “crime” of … Continue reading NDY Public Comment On Guardianship Urges More Rights Protections for Disabled & Elders →

Sarah Cavar: ASAN’s Invitational Summit on Supported Decision-Making

ASAN, Autistic Self-Advocacy Network, Health care decision-making, long term services and supports, Our News & Commentary Blog, Sarah Cavar, supported decision making, Surrogate Decisions & Guardianship, ,

A Summary of ASAN’s Invitational Summit on Supported Decision-Making and Transition to the Community: Conclusions and Recommendations. Introduction: The Autistic Self-Advocacy Network (ASAN) recently released a document stating the conclusions from their “Invitational Summit on Supported Decision-Making and Transition to the Community”. This was a summit that included allies and self-advocates to disability justice, and … Continue reading Sarah Cavar: ASAN’s Invitational Summit on Supported Decision-Making →