Category Archives: NDRN

NDY Files Comment Against Proposed CMS Rule Changes That Would Put More People In Nursing “Homes”

COVID-19, HHS, long term care, long term services and supports, Medicaid, national disability rights network, NDRN, nursing homes, Our News & Commentary Blog, Partnership for Inclusive Disaster Strategies, public comment, , , ,

Thanks to the Partnership for Inclusive Disaster Strategies for alerting disability advocates to proposed federal rule changes that would make it easier to put disabled people of all ages into nursing “homes” and other facilities, as well as make it harder for them to move back out to the community. The deadline for comments is … Continue reading NDY Files Comment Against Proposed CMS Rule Changes That Would Put More People In Nursing “Homes” →

Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues

Amy Hasbrouck, ari ne'eman, ASAN, Autistic Self-Advocacy Network, bill peace, bioethics, Bob Kafka, dredf, Liz Carr, national council on independent living, NDRN, Norm Kunc, Our News & Commentary Blog, Toujours Vivant-Not Dead Yet, , , , , ,

Months of work came to fruition on April 25 – 26, 2014 at the Crystal City Marriott in Arlington, VA.  Conference planning experts told us to expect a 10% no show rate, but out of our final count of 68 who signed up to attend (we had initially expected about 50), only 3 missed it.  … Continue reading Disability Rights Leadership Institute on Bioethics: Advancing the Disability Rights Perspective on Bioethics Issues →

Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee

"end of life", death through denial, dredf, futile care, Institute of Medicine, life-ending decisions, Marilyn Golden, national disability rights network, NDRN, Our News & Commentary Blog, protection and advocacy, Surrogate Decisions & Guardianship

As folks who read this blog already know, the Institute of Medicine’s Transforming End-of-Life Care Committee sets aside a portion of its meeting agenda to receive public comments.  At the Committee’s second public meeting, held at Stanford on May 29, DREDF’s Marilyn Golden attended to provide public comments. Not Dead Yet previously submitted written input … Continue reading Not Dead Yet Submits Written Comments to IOM Transforming End-of-Life Care Committee →

Why I Support the CRPD

abuse, access to health care, civil rights, CRPD - Convention on the Rights of Persons With Disabilities, death by starvation and dehydration, death through denial, diane coleman, futility, homicide, human rights, medical discrimination, national disability rights network, NDRN, Our News & Commentary Blog, Surrogate Decisions & Guardianship, treatment withdrawal, treatment withholding, united nations

This past week, the U.S. Senate voted to proceed with consideration of U.S.ratification of the United Nations Convention on the Rights of Persons with Disabilities (CRPD).  With a two-thirds majority required to move to the next step, the cloture vote was 61 to 36, with 3 not voting. Not Dead Yet has not yet formally … Continue reading Why I Support the CRPD →

NDRN’s Report Should Serve As a Call to Conscience for Health Care Providers

bioethics, civil rights, death by starvation and dehydration, involuntary euthanasia, medical killings, national disability rights network, NDRN, Our News & Commentary Blog, Surrogate Decisions & Guardianship, Tina Cartrette

The recommendations contained in the National Disability Rights Network’s (NDRN)report, “Devaluing People With Disabilities: Medical ProceduresThat Violate Civil Rights,” constitute nothing less than a call to conscience for health care providers who are withholding life-sustaining treatment without consent from people with disabilities who are not otherwise dying. Sometimes this is done at the request of … Continue reading NDRN’s Report Should Serve As a Call to Conscience for Health Care Providers →