Category Archives: organ transplants

30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination

discrimination, dredf, futile care, futility, health disparities, healthcare rationing, HHS, life-sustaining treatment, medical bigotry, medical discrimination, organ transplants, Our News & Commentary Blog, Patients Rights Action Fund, Quality Adjusted Life Years, , ,

Not Dead Yet, with partners the Disability Rights Education & Defense Fund and the Patients Rights Action Fund, have assembled a total of 30 disability rights and racial justice organizations to support further regulatory action by the U.S. Department of Health and Human Services Office for Civil Rights. Specifically, the groups are urging the formal … Continue reading 30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination →

NDY Submits Public Comment on Proposal on Living Organ Donation By “Persons With Certain Fatal Diseases”

Lisa Blumberg, organ donation, Organ Procurement and Transplantation Network, organ transplants, Our News & Commentary Blog,

This is a complicated subject. It impacts people with disabilities in multiple ways, both as organ donors and recipients. But the tone and recommendations of the proposal by the Ethics Committee of the Organ Procurement and Transplantation Network needed a response. Some excerpts follow. The organ transplant program saves lives, including some of our organization’s … Continue reading NDY Submits Public Comment on Proposal on Living Organ Donation By “Persons With Certain Fatal Diseases” →

John Kelly Testifies for ASAN Bill in MA Prohibiting Disability Discrimination in Organ Transplant Eligibility

ASAN, Autistic Self-Advocacy Network, john kelly, organ transplants, Our News & Commentary Blog, Second Thoughts, ,

On October 20, John Kelly submitted testimony on behalf of Second Thoughts Massachusetts and Not Dead Yet in support of H 3271, “An Act concerning nondiscrimination in access to organ transplantation.” Not Dead Yet is proud to follow the leadership of the Autistic Self Advocacy Network (ASAN) on this issue. Lydia Brown of the Boston … Continue reading John Kelly Testifies for ASAN Bill in MA Prohibiting Disability Discrimination in Organ Transplant Eligibility →

Pallimed Blogger Doc Not Happy with Organ Procurement Proposals

bioethics, donation after cardiac death, organ transplants, Our News & Commentary Blog, palliative care, pallimed, ,

Christian Sinclair, a palliative care and hospice physician who writes on the Pallimed blog, caught the NPR story on the Organ Procurement and Transplantation Network/United Network for Organ Sharing (OPTN/UNOS) meeting earlier this week to issue new sweeping rules on “Donation after Cardiac Death.” Good news, for now, BTW.  We have been informed that the … Continue reading Pallimed Blogger Doc Not Happy with Organ Procurement Proposals →

NPR’s Morning Edition Covers the Organ Procurement Debate

bioethics, donation after cardiac death, national catholic partnership on disability, OPTN, Organ Procurement and Transplantation Network, organ transplants, Our News & Commentary Blog, Rob Stein, Stephen Mikochik

NPR’s Morning Edition included a segment on the policy debate regarding organ procurement taking place June 24 and 25 at the Board meeting of the Organ Procurement and Transplantation Network/United Network for Organ Sharing (OPTN/UNOS) in Richmond, Virginia.  Not Dead Yet issued a press release on this subject last week: Not Dead Yet Urges Secretary Sebelius … Continue reading NPR’s Morning Edition Covers the Organ Procurement Debate →