Category Archives: treatment withholding

NDY Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations

healthcare rationing, HHS, life-ending decisions, life-sustaining treatment, Lisa Blumberg, Medicaid, medical discrimination, Our News & Commentary Blog, public comment, Quality Adjusted Life Years, quality of life judgments, suicide prevention, treatment withdrawal, treatment withholding, ,

Not Dead Yet has joined many disability organizations in applauding the U.S. Dept. of Health and Human Services (HHS) Office for Civil Rights for proposing critically needed rules to update and amend its Section 504 regulations in the area of healthcare. NDY’s public comment focuses primarily on the Department’s questions concerning medical treatment (Section 84.56), … Continue reading NDY Public Comment on HHS/OCR Proposed Section 504 Healthcare Regulations →

HHS Requests Public Comments and Stories of Discrimination in Healthcare

Autistic Self-Advocacy Network, HHS, life-sustaining treatment, medical discrimination, Our News & Commentary Blog, public comment, Terrie Lincoln, treatment withdrawal, treatment withholding, ,

The federal Department of Health and Human Services (HHS) is proposing important and beneficial new regulations under Section 504 to clarify how the law prohibits healthcare discrimination based on disability. The notice of proposed regulations from the federal government is full of examples of disability discrimination by healthcare providers. For example, based on a report … Continue reading HHS Requests Public Comments and Stories of Discrimination in Healthcare →

NCIL’s Advocacy Priorities Guide Includes Key NDY Policy Issues

"death with dignity", access to health care, aid in dying, assisted suicide, futility, healthcare rationing, life-sustaining treatment, medical discrimination, national council on independent living, Our News & Commentary Blog, Quality Adjusted Life Years, treatment withholding, , , ,

As July 26, the 31st Anniversary of the Americans With Disabilities Act, approaches, the National Council on Independent Living is holding its annual conference. NCIL has announced that its annual Advocacy Priorities Guide is now available, containing “specific information on the national legislative and policy priorities identified biannually by the NCIL membership.” NCIL’s Healthcare priorities include … Continue reading NCIL’s Advocacy Priorities Guide Includes Key NDY Policy Issues →

Carol Cleigh Sutton – DNR: Choice or Medical Murder?

advance directives, Carol Cleigh Sutton, DNR, Do-Not-Resuscitate, Health care decision-making, life-ending decisions, life-sustaining treatment, medical discrimination, Our News & Commentary Blog, treatment withholding, , , , ,

A friend asked if I knew how many people have been medically killed since Covid-19. My answer is that there is no way to know. We know about Michael Hickson and  we’re just learning about Sarah McSweeney and perhaps many others from a recent NPR investigation.  However, when relatives agree, or at least don’t vociferously … Continue reading Carol Cleigh Sutton – DNR: Choice or Medical Murder? →

NDY Applauds ADAPT of Texas Demand For Investigation of Michael Hickson’s Death

ADAPT, better dead than disabled, bioethics, brain injury, COVID-19, futility, health disparities, healthcare rationing, medical discrimination, medical killings, Michael Hickson, Our News & Commentary Blog, Press Releases, treatment withholding, , ,

NDY Press Release: ADAPT of Texas has issued an Independence Day announcement that disability advocates are holding a vigil at St. David’s South Austin Medical Center to support the family of Michael Hickson, a 46-year old Black man with disabilities who died after being denied COVID-19 treatment. Not Dead Yet applauds ADAPT of Texas’ demand … Continue reading NDY Applauds ADAPT of Texas Demand For Investigation of Michael Hickson’s Death →