Category Archives: futility

30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination

discrimination, dredf, futile care, futility, health disparities, healthcare rationing, HHS, life-sustaining treatment, medical bigotry, medical discrimination, organ transplants, Our News & Commentary Blog, Patients Rights Action Fund, Quality Adjusted Life Years, , ,

Not Dead Yet, with partners the Disability Rights Education & Defense Fund and the Patients Rights Action Fund, have assembled a total of 30 disability rights and racial justice organizations to support further regulatory action by the U.S. Department of Health and Human Services Office for Civil Rights. Specifically, the groups are urging the formal … Continue reading 30 Organizations Urge HHS/OCR To Take New Steps To Prevent Healthcare Discrimination →

NDY, National ADAPT, ADAPT of Texas and ASAN Join Amicus Brief In Tinslee Lewis Case

ADAPT, amicus brief, Autistic Self-Advocacy Network, bioethics, court cases, futility, healthcare rationing, life-sustaining treatment, medical discrimination, Michael Hickson, Our News & Commentary Blog, Tinslee Lewis, treatment withdrawal, ventilator, , ,

On October 8, 2020, Not Dead Yet, National ADAPT, ADAPT of Texas and the Autistic Self Advocacy Network joined in a friend-of-the-court (“amicus”) brief filed by Texas attorney Michelle Hayes to support Tinslee Lewis and her mother’s case to maintain life support. The “strange bedfellows” amici groups include disability rights, religious and pro-life organizations. Tinslee … Continue reading NDY, National ADAPT, ADAPT of Texas and ASAN Join Amicus Brief In Tinslee Lewis Case →

Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions

ADAPT, bioethics, ethics committee, futile care, futility, Health care decision-making, healthcare rationing, life-ending decisions, life-sustaining treatment, medical discrimination, Michael Hickson, national council on independent living, Our News & Commentary Blog, surrogate decision making, Surrogate Decisions & Guardianship, treatment withdrawal, , , ,

On July 24th, ADAPT of Texas filed a complaint with the federal Department of Health and Human Services Office for Civil Rights (OCR) concerning the death of Michael Hickson, a Black Disabled man, at St. David’s South Austin Medical Center. The complaint called for . . . “. . . an investigation of St David’s … Continue reading Michael Hickson: Disability Organizations Challenge Medical Futility & Surrogate Decisions →

Carol Cleigh Sutton: How Deeply Ableist is Mainstream Media?

ableism, better dead than disabled, bioethics, Carol Cleigh Sutton, COVID-19, futility, health disparities, healthcare rationing, media bias, Michael Hickson, Our News & Commentary Blog, , ,

A man named Michael Hickson died on June 11, 2020. He was denied food an fluids for 6 days. He was a Black man. His death occurred in a climate of national discussion about the killing of Black men. His wife, Melissa, has ample evidence that his death was deliberate and was the result of … Continue reading Carol Cleigh Sutton: How Deeply Ableist is Mainstream Media? →

NDY Applauds ADAPT of Texas Demand For Investigation of Michael Hickson’s Death

ADAPT, better dead than disabled, bioethics, brain injury, COVID-19, futility, health disparities, healthcare rationing, medical discrimination, medical killings, Michael Hickson, Our News & Commentary Blog, Press Releases, treatment withholding, , ,

NDY Press Release: ADAPT of Texas has issued an Independence Day announcement that disability advocates are holding a vigil at St. David’s South Austin Medical Center to support the family of Michael Hickson, a 46-year old Black man with disabilities who died after being denied COVID-19 treatment. Not Dead Yet applauds ADAPT of Texas’ demand … Continue reading NDY Applauds ADAPT of Texas Demand For Investigation of Michael Hickson’s Death →