Not Dead Yet engages in dialogue and provides input to policy makers in a variety of contexts, such as commenting on proposed regulations, urging appropriate action by public or private decision-makers, agencies, governmental or quasi governmental bodies, and joining in policy letters with other disability rights organizations.
Below are links to some examples of Not Dead Yet’s policy work:
Comments by Diane Coleman on Behalf of Not Dead Yet Before the National Council on Disability (April 22, 2013)
Recommendations of Two Additional Members of the Institute of Medicine’s Transforming End of Life Care Committee (January 29, 2013)
Not Dead Yet Disability Advocates Critical of C&C’s Promotion of Death by VSED
Not Dead Yet Comments on Proposed “Plain Language Rewrite” of Bylaws of the Organ Procurement and Transplantation Network (August 28, 2012)
Letter to Montana Medical Board urging rescission of assisted suicide position statement (July 18, 2012)
ADAPT, DREDF, NCIL and ASAN Leaders Oppose Assisted Suicide – Flyer (June 30, 2012)
Not Dead Yet Comments on the Proposal to Update and Clarify Language in the DCD (Donation after Cardiac Death) (June 14, 2012)
Letter to Dr. Phil Show regarding “Deadly Consequences” segment with organizational sign ons (May 29, 2012)
Comments to the Organ Procurement and Transplantation Network/United Network for Organ Sharing (Jan. 12, 2012)



[...] Coleman, J.D., the CEO of Not Dead Yet, wrote in a policy statement, “The majority of our concerns focus on the potentially harmful impact of organ procurement [...]