Not Dead Yet’s Policy Work

Not Dead Yet engages in dialogue and provides input to policy makers in a variety of contexts, such as commenting on proposed regulations, urging appropriate action by public or private decision-makers, agencies, governmental or quasi governmental bodies, and joining in policy letters with other disability rights organizations.

Below are links to some examples of Not Dead Yet’s policy work:

Second Thoughts Massachusetts Letter to New Mexico Attorney General Gary King Urging Appeal of Assisted Suicide Case (Feb. 7, 2014)

NDY Letter to New Mexico Attorney General Gary King Urging Appeal of Assisted Suicide Case (Jan. 22, 2014)

National Disability Letter on Living With Feeding Tubes and Breathing Support (Dec. 20, 2013)

John Kelly’s NCD Comment: New Disability and the Rush to Judgment (Dec. 5, 2013) (video comment)

John B. Kelly’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey (Nov. 1, 2013)

Diane Coleman’s Response to Institute of Medicine’s Committee on Approaching Death Online Survey (Oct. 31, 2013)

Not Dead Yet Public Comment on Revised Proposed Donation After Cardiac/Circulatory Death (DCD) Protocols (Oct. 17, 2013)

Not Dead Yet’s Public Comment to U.S. Dept. of Health and Human Services on Affordable Care Act’s Nondiscrimination Regulations (Sept. 30, 2013)

Not Dead Yet Comments to Organ Procurement and Transplantation Network (Sept. 9, 2013)

Not Dead Yet Public Comments on Futility Before the National Council on Disability (July 25, 2013, Video Comments, Video Text, Full Written Comments)

Not Dead Yet Public Comments on Disability Related Concerns About POLST Submitted to Institute of Medicine’s Committee on Approaching Death (July 23, 2013, Video Comments, Video Text, Full Written Comments)

Not Dead Yet Public Comment on Proposed Donation After Cardiac/Circulatory Death (DCD) Protocol (June 19, 2013)

Comments on Futility by Diane Coleman on Behalf of Not Dead Yet Before the National Council on Disability (April 22, 2013)

Recommendations of Two Additional Members of the Institute of Medicine’s Transforming End of Life Care Committee (January 29, 2013)

Not Dead Yet Disability Advocates Critical of C&C’s Promotion of Death by VSED

Not Dead Yet Comments on Proposed “Plain Language Rewrite” of Bylaws of the Organ Procurement and Transplantation Network (August 28, 2012)

Letter to Montana Medical Board urging rescission of assisted suicide position statement (July 18, 2012)

ADAPT, DREDF, NCIL and ASAN Leaders Oppose Assisted Suicide – Flyer (June 30, 2012) PDF | TXT | HTML 

Not Dead Yet Comments on the Proposal to Update and Clarify Language in the DCD (Donation after Cardiac Death) (June 14, 2012)

Letter to Dr. Phil Show regarding “Deadly Consequences” segment with organizational sign ons (May 29, 2012)

Comments to the Organ Procurement and Transplantation Network/United Network for Organ Sharing (Jan. 12, 2012)